Dementia Support for Everyone

Dementia Support for Everyone

Dementia affects a person diagnosed and their family and friends. Below is summary of dementia support available in Bromley to anyone affected by dementia.

 

The First Point of Call

The Bromley Dementia Support Hub (020 3328 0366) provide one stop access to dementia support to anyone with diagnosed dementia living in Bromley, and their family and friends caring for them. The Hub provides advice and support to people with dementia and their carers. Staff at the Hub can discuss your particular needs and interests with you and help you make the most of what support is available in your local community.

 

Social Services

As your needs progress, you may want extra support with getting out or daily tasks such as preparing meals, keeping your house clean and tidy or washing and dressing. Social Services at the London Borough of Bromley can support you with accessing help in areas you are finding difficult to manage.

In order to receive help from Bromley Social Services, you have to undergo a Care Needs Assessment, to make clear what support you require to carry on living independently at home.

The social worker carrying out the assessment will measure your needs against Bromley Council‘s eligibility criteria.  The level of your needs will determine whether or not you receive a service.

Once the areas for support have been decided, you will need to complete a financial assessment to review look at your financial circumstances to see if the Bromley Council is able to contribute to the cost of your care.

Contact the Adult Early Intervention Team at the London Borough of Bromley for an assessment or reassessment of your care needs (020 8461 7777).

Financial Support

If you need a bit of extra help as a result of your dementia or any other health needs, you may be entitled to some extra financial support. If you qualify, it could make a great difference to your quality of life and should be claimed.

Financial Support includes:

For information on any other benefits, pensions or financial advice contact:

Age UK Bromley and Greenwich (if you are over 60 years old)
Tel: 020 8315 1878

Bromley Citizens Advice Bureau
Tel: 020 8315 1940

 

Emotional Support

Receiving a diagnosis of dementia can come as a shock and everyone will cope in their own way. There are a number of places you can turn to for emotional support when you need it.

Psychological Therapies

If you are feeling low in mood, anxious or worried and would like to talk things through with someone, you can contact Talk Together Bromley (Tel: 0300 003 3000) who provide one-to-one therapy, counselling and group work.

The Silver Line

The Silver Line is a free confidential helpline providing information, friendship and advice to older people, open 24 hours a day, every day of the year. You can call them free for a chat on 0800 4 70 80 90.

Samaritans

Samaritans is a charity providing a 24 hour call centre offering someone to talk to, off the record, at any time about whatever is worrying you. Trained volunteers are on hand to provide a listening ear. Telephone them for free on 116 123.

National Dementia Helpline

If you have concerns about Alzheimer‘s disease or about any other form of dementia, Alzheimer‘s Society National Dementia Helpline can provide information, support and guidance. Telephone 0300 222 1122.

Admiral Nursing Direct Dementia Helpline

The Admiral Nursing helpline offers specialist practical and emotional support by telephone or via email. Telephone 0800 888 6678 or email direct@dementiauk.org

 

Support for Young-Onset Dementia

Young-onset or early onset-dementia affects people under 65. There are estimated to be at least 42,000 younger people with dementia in the UK. The symptoms of dementia are like those affecting people over 65 but younger people often have different needs and require some different support.

A Dementia Advisor from the Bromley Dementia Support Hub can work with you and your family and friends to provide support that you feel is appropriate to your situation.

The charity, Young Dementia UK (Tel: 01865 794311) can provide specialist information and advice on young-onset dementia.

 

Support for Dementia Carers

As you are coming to terms with your dementia diagnosis, your friends and family may also be finding this difficult. As your dementia progresses you may need to turn to them for increasing support and they may find they need support in their caring role.

The Bromley Dementia Support Hub provides support for dementia carers consisting workshops and one-to-one coaching in your home so carers can learn about dementia, effective communication and looking after themselves.

Carers Bromley (Tel: 0800 015 7700) is a local charity that provides advice and emotional support to anyone caring for somebody with dementia.

 

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This article is part of a series of articles called Living with Dementia. They are for Bromley residents and are being published one a week between 15th May and 3rd July 2017. See more Living with Dementia articles as they are published here.

Living Well with Dementia

Living Well with Dementia

Bromley-wide dementia support services focus on helping people to live as well as possible with dementia.

A dementia diagnosis is life changing for the person diagnosed, family carers and friends. There is currently no cure for dementia. It can take time for everyone affected to come to terms with the diagnosis. Dementia is a challenging illness but by adapting your lifestyle, finding the right support for you as soon as possible, you can still live well with dementia.

Keeping your mind and body active are incredibly important in living as well as possible with dementia and doing the things you want to do for as long as possible.

The Benefits of Dementia Support

MindCare Dementia Support runs a specialist dementia centre in Beckenham, where people living with dementia can interact with other people and engage in stimulating indoor and outdoor activities. The daughter of a MindCare client recently emailed them about how her mother benefited from attending the dementia support centre:

“Just a little note to say thank you for all the help, attention and encouragement you give my mum.
 
As I don’t live near my mum, we have daily telephone conversations and there is a marked difference in her voice on the days she attends the MindCare Centre.  The tone of her voice is upbeat and she is full of excitement, telling me what responsibilities she was given during the day. As a result, she feels needed and appreciated and part of a community again, which is very important for people with dementia like her.
 
We’ve also noticed that her memory and conversational skills have improved with the interaction she gets with people at the Centre.
 
She is looking forward to the summer when she can join in gardening duties. She also enjoyed having her nails painted recently.
 
Thank you and keep up the good work!”

 

Bromley is Becoming a Dementia Friendly Community

Bromley businesses and public services are working to become more dementia friendly. They are working to understand what it is like to live with dementia and adapt their services so you feel welcome and can take part in everyday life.

For example, MyTime Active are dementia friendly. If you let them know about your needs, they can help stay active, exercise and socialise at their leisure centres.

There are more dementia friendly places, activities and memory/dementia cafes across Bromley, to help you create new experiences and memories with family carers and live well with dementia.

Access Local Bromley Dementia Services and Support

If you are interested in local Bromley dementia services, support groups and activities, contact the Bromley Dementia Support Hub where a Dementia Advisor can guide you through options and help you find what suits you best.

 

More Living with Dementia Articles

This article is part of a series of articles called Living with Dementia. They are for Bromley residents and are being published one a week between 15th May and 3rd July 2017. See more Living with Dementia articles as they are published here.

Planning for the Future with Dementia

Planning for the Future with Dementia

This information is correct at 5th May 2017. Please consult with a qualified, legal professional before taking actions below.

Planning ahead can give peace of mind and offer stability in the future for you and your family. Given the progressive nature of dementia, you should start to make your plans about how you want to be cared for, managing your finances and assets, as soon as possible. If you wait too long, your right to make your own decisions may be questioned.

There may be things that you want to consider, such as what you would like to happen if you need more support and care. Would you prefer to stay in your own home? Might you want to move to specialist accommodation, such as a residential or nursing home? You may have specific religious or cultural needs which you would want taken into account when deciding where and how you are cared for, such as attending a local church or meeting place.

 

Advanced Planning

An Advance Decision helps you to outline what actions should be taken for your health in the event you are no longer able to make those decisions due to illness or incapacity.

An Advance Statement is a declaration of general beliefs and aspects of life you value that reflects your wishes and preferences and can be used to help health professionals and others, such as family members, to decide what sort of support you would want if you were unable to communicate your wishes.

Your advance plans can be as simple or detailed as you want.

Talk to your GP and a solicitor about drafting an Advance Decision or Statement.

Whether you decide to do something in an official capacity or not, it is a good idea to talk over any future wishes with your family and friends to make sure they know what you want.

 

Lasting Power of Attorney

A Lasting Power of Attorney (LPA) is a legal document in which one person gives another or others the power to handle his or her personal affairs. The person who grants the power over their affairs is known as the ‘donor’ and the person appointed to make decisions on their behalf is called their ‘attorney’. LPAs can only be organised when the donor is mentally capable of understanding what he or she is agreeing to. LPAs can be made to cover your health, medical treatment, property and financial affairs.

After your dementia diagnosis, it is important you seek legal advice about LPAs as soon as possible, to ensure you have a say in who helps you with choices in the future.

The Office of the Public Guardian (0300 456 0300) provides information about Lasting Powers of Attorney. It is a good idea to get advice from a solicitor before making a Lasting Power of Attorney. To find a solicitor in your area, visit the Law Society website or call 020 7320 5650.

 

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This article is part of a series of articles called Living with Dementia. They are for Bromley residents and are being published one a week between 15th May and 3rd July 2017. See more Living with Dementia articles as they are published here.

Driving and Transport for People with Dementia

Driving and Transport for People with Dementia

Details about driving with dementia in this article are correct at 5th May 2017 and is for people with dementia in Bromley. Please check with Driver & Vehicle Licensing Agency (DVLA) for the most up-to-date requirements.

Having dementia does not automatically mean you cannot drive a vehicle. What is most important is if it is safe for you to drive. Dementia can affect your ability to drive. Dementia can affect your coordination, thinking, reaction time and ability to remember how to get to places.

If you have a diagnosis of dementia, hold a driving licence and drive regularly, you must immediately notify the Driver & Vehicle Licensing Agency (DVLA), your car insurer and any other driving authority or agency. If you do not, you may have to pay a fine. 

The DVLA will want to reassess your driving abilities and to check there are any risks to you or others.

The DVLA will require you to complete and return a medical questionnaire to them. You will also be asked to give permission for the DVLA to request a report from your GP or medical specialist.

Depending on the outcome of this report, it may be decided that you are safe to continue driving but this could be later reassessed. You may be asked to undergo an assessment of your driving abilities before a decision is made or you may have your licence medically revoked.

You can contact the DVLA Medical Enquiries via their website, telephone (0300 790 6806) or post (DVLA, Swansea, SA99 1TU).

Many people find giving up driving one of the hardest things to do. You may feel your car is an important part of your independence and, without it, your life may have to change. This can be painful and frustrating.

Below are a few things you can do and services to look into to get you to places:

 

  1. Work out how much your car costs, counting the cost of the car, tax, insurance, maintenance and petrol. It can come to a surprisingly high figure, which you can spend on buses, trains and taxis.
  2. Apply for a Freedom Pass. Bromley Council provide Freedom Passes (0300 330 1433) for people with a disability such as dementia.
  3. You may also be able to qualify for a Blue Badge in Bromley. Call 0300 303 8661 or email bluebadges@liberata.com.
  4. The Taxi Card (020 7934 9791) is a scheme for London residents with serious mobility impairments or who are severely sight impaired.
  5. Ask family and friends for lifts or help with shopping. Don’t be embarrassed to ask: most people will be happy to help. Point out that you have an illness that stops you driving, just as if you were losing your sight.
  6. See if Royal Voluntary Service (RVS) Community Transport (020 8462 2371) is for you. RVS is a door-to-door scheme designed to get you out and about. When you reach your destination, the volunteers can lend a hand if needed. It can be arranged for the volunteer driver to accompany you on any visit you may require, such as medical appointments, shopping and, where needed, they would be happy to carry the bags into the house.
  7. Have a look at Dial-a-Ride (0343 222 7777), a transport scheme providing free door-to-door transport to people who fit their eligibility criteria, such as being over 85 or receiving certain disability benefits. People living with dementia may only be able to book a journey if travelling with someone else.

 

More Living with Dementia Articles

This article is part of a series of articles called Living with Dementia. They are for Bromley residents and are being published one a week between 15th May and 3rd July 2017. See more Living with Dementia articles as they are published here.

5 Tips for Keeping Safe When Living with Dementia

5 Tips for Keeping Safe When Living with Dementia

  1. Use a credit or debit card rather than carrying large amounts of cash when going shopping. If you find your PIN hard to remember, ask your bank to change it to something easier. Some banks may also make arrangements for you to go back to swiping your card as opposed to using a pin, if this is easier for you.
  1. Don’t accept cold callers. Although most cold callers are legitimate, receiving a visit from a trader or business can be worrying, particularly if you are on your own. To make sure you are safe, you could consider displaying a ‘No Cold Callers’ sticker that warns cold callers not to visit. To get your free sticker contact Bromley Trading Standards on 020 8461 7832 or email standards@bromley.gov.uk. If you display the sticker and a trader or business ignores it, you can report them to Trading Standards.
  1. Make sure your door is securely shut and locked when you are at home and only unlock it when you are sure who is on the other side. You could use a spyhole or window to see who is calling.
  1. Say no to junk and scam mail. The Mailing Preference Service (0845 703 4599) enables you to have your name and home address removed from the lists to stop you receiving junk mail in the post.
  1. Registering your phone numbers with the Telephone Preference Service (0845 703 4599) is free and makes it illegal for companies or organisations who want your business to call without your permission.

 

More Living with Dementia Articles

This article is part of a series of articles called Living with Dementia. They are for Bromley residents and are being published one a week between 15th May and 3rd July 2017. See more Living with Dementia articles as they are published here.

20 Tips to Live Well with Dementia

20 Tips to Live Well with Dementia

There are many positive steps you can take to help yourself cope with the changes dementia brings. The first thing to remember is that these changes are not going to happen suddenly. You will have time to adjust your lifestyle and to find help when you need it. With support you can find a new normal. 

Here are 20 tips people with dementia have found useful to live well with dementia:

 

  1. Write appointments and things to do down or use apps. Make lists of what you need to do, keep a diary and get into the habit of checking it regularly, makings notes of where things are. A paper diary or an app on a smartphone can be useful for remembering what you have done as well as upcoming appointments or events.
  2. Use a paper calendar and keep it in a place you will look every day, like on the fridge or cupboard.
  3. Save yourself the trouble of remembering to pay bills. Ask your bank to set up direct debits and standing orders for all your regular bills such as gas, electricity and rent.
  4. Decide where to keep important things (like money, keys and eye glasses) and always keep them in the same place (like your bedside table). During the day, you may want to keep eye glasses or keys on a chain around your neck.
  5. Put clothes away in your wardrobe in complete outfits to save time getting ready in the morning.
  6. Use visual images and cues to help you remember. Use images on cupboards to remind you where things are kept or an image of a key by the front door to remind you to take your keys when you go out.
  7. If you sometimes get muddled about the day, date or time there are orientation clocks available to buy which display all of this information clearly in one place.
  8. Make a routine for yourself. You may find it easier to keep track if you have a regular way of doing things and a particular time to do them.
  9. Slow down and give yourself extra time to complete daily tasks to avoid stress.
  10. Timers can be a useful way of reminding yourself to check on cooking or change a load of washing.
  11. Ask your chemist or GP about help with remembering to take your medication.
  12. Take care of yourself. Eat well, exercise regularly and make sure you take any medicines you are prescribed. Make sure you have regular eye tests, hearing tests and health checks with your GP.
  13. Keep up your social life and go out. If a friend seems to find it hard to know what to say to you, don’t let them drift away. Explain that you still need to see them, even if it is awkward at first for them.
  14. Take care of your mental health. Make sure that you have someone to talk to about your feelings about the illness.
  15. If you are depressed or have other worrying feelings or thoughts, you may be able to access counselling or other support through your GP.
  16. Be positive. Focus on what you can do instead of things that have become too difficult.
  17. Tell people that you have a memory problem and don’t be embarrassed to ask them to repeat or explain things.
  18. Be kind to yourself. If you get frustrated when things aren’t going well, remember it is the illness and not you.
  19. Ask for help when you need it and take it.
  20. Speak to people going through the same thing. There are groups, dementia cafes and online forums you can use to meet and speak to others in a similar situation to you.

 

More Living with Dementia Articles

This article is part of a series of articles called Living with Dementia. They are for Bromley residents and are being published one a week between 15th May and 3rd July 2017. See more Living with Dementia articles as they are published here.